Annmaree Watharow, a Lived Experience Research Fellow at the University of Sydney, explores Usher syndrome's life impact in her life, family and work. She is the author of two books on dual sensory impairment.

Emily Shepard is the parent of a teen with Usher syndrome, as well as co-founder and CEO of UsherKids Australia, a support organisation for families of children and young people with Usher syndrome. Emily is also the clinic manager at the Melbourne Collaborative Sensory Clinic, a multidisciplinary clinic at the University of Melbourne providing streamlined, collaborative care for those with Usher syndrome.

Emma Boswell who herself has Usher is the National Manager of Usher Services at a UK charity, she is also the Chair of the Usher Network under Deafblind International. She advocates for and improves support for people with Usher syndrome.